Vall d'Hebron Talks by VHIR 'Patient and parent involvement in cancer research: a practical perspective'

Ponent: Leona Knox, Head of Research at Solving Kids’ Cancer UK.

Leona Knox is Head of Research at Solving Kids’ Cancer UK, a non-profit organisation fostering international collaboration to accelerate pioneering clinical research in neuroblastoma. Leona is a passionate advocate dedicated to multi-stakeholder working for the benefit of children with cancer, and actively participates in several academic committees and working groups to help inform research agendas and influence policy. She is founding Chair of the SIOPEN Advocate Committee, a member of the ITCC Advocate Committee, and previously served as a member of the AACR Pediatric Working Group Steering Committee and ACCELERATE Steering Committee. Leona’s son Oscar died of neuroblastoma in 2014 following extensive therapy in the UK and US.

This talk reflects on the transition from being a parent of a child with cancer to structured involvement in European research networks. From personal experience, it highlights the importance of meaningful involvement and practical ways to build partnerships that enhance research.

Host:
*Dr. Lucas Moreno Martín-Retortillo, Head of the Pediatric Oncology and Hematology Service at Vall d'Hebron University Hospital and Head of the Childhood Cancer and Hematological Diseases Research Group. Vall d'Hebron Research Institute (VHIR).

*Sara Mas Assens, Head of Impact and Responsible Research and Innovation (RRI) - Internal Strategy Department. Vall d'Hebron Research Institute (VHIR).

Online: https://gencat.zoom.us/j/81197810307